Skip to main content

Year End-ish Post

I've been "keeping advent" this season in the way one might keep the Sabbath or Lent -- intentionally under scheduling, decluttering, opting out of historic holiday obligations, fasting -- and I think it's having an effect. All this advent keeping makes me long for the feasting of Christmas. I eagerly yearn for Monday when all heaven breaks loose to celebrate Christ's advent on earth.

Advent keeping has also allowed me to be still and recognize patterns that have played out over the last year. 2023 has been tough. I wonder who else feels this; I know I'm alone in feeling the weight of an unpredictable world. My very body tells the tale of stress and years of inattention as I work through intense lower back pain. Vocationally I've strained toward product-market fit with Empowered Together's marketplace. I'm left longing for a co-laborer in this effort. While I remain deeply grateful for my family, I feel the pressures of parenting a child with a disability. Some of those pressures are to be expected (eg; lacking sleep) and some are less talked about (eg; addressing the mental health needs of all family members, creating beauty out of our story).

Where does this leave us? Assuming that you, too, have things you'd like to lay down in 2023, it leaves us yearning for newness, for celebration, for hope. It leaves us exactly where advent is meant to leave us, yearning for a Savior. As seemingly unseasonal as advent keeping has been, I need this wintering time of inspecting each arena of my life for how it integrates with the rest, of reflecting on my need for salvation. If you, too, are feeling pulled towards quiet and introspection to make sense of your life, to make sense of the world, join me in keeping advent.

Comments

Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c

Startup Day 676: MVP coming soon

Hunkering down and revisiting user data consumed much of my last hundred-odd days, resulting in a Minimum Viable Product (MVP). Simply built using Softr and Airtable (with tons of gratitude for  INVANTI 's support), I'm testing the willingness of Disability Self-advocates and Caregivers to find and write reviews of providers they recommend. Of the 200+ pain points expressed by Empowered Together's community, 88% can be addressed by the online marketplace simulated in our MVP. Users get to recommend respite providers, social activities, and therapists they love. We're testing a shift from Word of Mouth recommendations to tech-enabled referrals and lead gen, leveraging the collective voice and purchasing power of the disability community. This progress energizes me as a founder. This could be the key to unlock support for families affected by disability. My narrative for a startup bootcamp's application summarizes it best: As Empowered Together’s founder, Sarah has a

Startup Day 703: MVP live...

It's official, you can visit app.empoweredtogether.us  to see what we've been building! It's been a long journey to get here though this is really just the beginning. Yesterday, I reflected on why I'm doing this ( watch here ). I want to dive a bit deeper around the concept of creating the future I want to live in with my kids. I'm building a marketplace to connect families affected by disability with recommended businesses. I hypothesize that this will increase the rate of excellent customer experiences for People with Disabilities (PwD) -- 80% of their customer experiences are currently FAILURES! I also hypothesize that businesses will see the value in welcome PwD and society will slowly become more inclusive and accessible. Big dreams, I know, but that's the future I'm creating. On the personal side, creating that future would be meaningless to me if my kids and I didn't get to enjoy it together. That means it's equally important for me to engage