I watched the movie Ezra with a mom friend Sunday. In short, I commend it to you. According to the trailer note, the film, "follows a stand-up comedian living with his father, while struggling to co-parent his autistic son Ezra with his ex-wife. When forced to confront difficult decisions about their son’s future, Max and Ezra embark on a cross-country road trip that has a transcendent impact on both their lives." If you're curious what I thought, read on and beware of spoilers. 😬 And here are the cast of characters for context: Ezra: autistic son Jenna: mom Max: dad Stan: grandpa and Max's dad This movie tackles a LOT in 100 minutes. . . Hyperbole: To tee it up properly, understand that the events in this film are over the top. If you go in expecting this kind of exaggeration, I think you'll be less flummoxed at how unbelievable it all is and can more readily see yourself and people you know in the characters. The hyperbole serves to get us thinking about the
Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c