Skip to main content

on a happier note

My dear auntie commented on the darkness of my recent posts. Fear not, life in Sarah-land is actually quite blissful. Today was a lovely example of that . . .

Gasping for air and willing my body to do things it doesn't seem to want to do -- this is Crossfit and I'm thankful my mind triumphs over my body.

Gratitude for a couple amazing young men that managed to renovate a forgotten garden.

Glimpses of a mentor who has poured such prayer, time, love, and care into my life, who has poured forth wisdom into a vessel that doesn't always contain that wisdom but always craves more.

Precious moments with a precious Love.

Family who recognizes that my definition of "cooking" is directing others to cook; they love me, though they may chide me unmercifully.

Philosophical discussions with friend and family on subjects as varied as reincarnation, sexual abuse at the hands of authority figures, Judaism, and lemon cake.

Willing spring to come by camping out in front of the fire pit, withstanding smoke-induced tears and chilled temps in an effort to usher in warmer days.

Gazing up at stars on a brilliantly clear night.

Life is so good!

Comments

Amy said…
Sweetest Sarah,
Never fear that you must be "always happy". I cannot imagine the horror that you are dealing with every day~the thousands enslaved by no choice of their own...and at such a tender age. It is the human condition at its most evil. The grim reality of victims becoming perpetrators themselves is certainly there. I feel blessed beyond words for our Fathers' Grace allowing me to overcome past hurts so I might help and nurture others.
One word of motherly (Auntily?) advice of which I am certain that you are aware~ compartmentalize. The daily trauma of what you are dealing with will eat you alive otherwise. Love and Blessings to you, my Sarah. God is whirling around you...can you feel Him?
Monday, April 04, 2011
Post a Comment

Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c
1 comment
Read more

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources.  We built the Empowered Together app and tried crowd-sourcing those recommendations.  In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven.  Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.
Post a Comment
Read more

leap for joy

Greetings from the land of Knee Shorts modest clothing, virgin margaritas, & clean flicks. Yes, I really encountered all those at the Great Salt Lake . The drive rivaled the drive to Vegas for number of praises from Mom. In my humble opinion, the drive to SLC wins, hands down. Mountains rise from clover-covered valleys, climaxing in snowy peaks. Cows & horses graze in bucolic pastures. We had a 2+ hour conference call w/ the siblings filled w/ Lisa singing Mariah Carey & Tim claiming he really was listening to everything we said. We arrived to the perfect hotel where we got to run, swim, AND bed jump. Thanks to Christine who introduced me to a bed jumping website (http://www.hotelsbycity.net/blog/bed-jump/), I had to try it. Caution: bed jumping can result in sleeping with one end of your bed on the floor OR with your suitcase holding up the mattress. By the way, Mom has declared a new gift. In addition to Master Map Reader and Spatial Arranger, she hereafter can spe
9 comments
Read more