Jess and I returned to an All Soul's Community Group tonight. Since it was Indian cuisine night, we took kheer, an Indian version of rice pudding. Jess and I had fun cobbling a few recipes together and waiting for the rice soup to reduce to rice pudding. After dinner and dessert, we dove into Mark 1:16-45. Mark's a very direct writer, not one to embellish stories with personal interpretation. It probably helped his readers form their own opinions of this Man from Galilee. It also leaves modern readers with lots of questions. For example, why did Jesus command demons not to speak of Him and a leper not to say anything about his healing? We bandied about many interpretations. What's yours?
Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c