Skip to main content

trains

This weekend was a first class weekend from start to finish. This was my first time traveling alone in India by train and the only class left was first class (summer is high travel time around the country) so I bit the bullet and splurged on first class tickets. The experience did not disappoint. Here are some highlights:
  • The crotchety old man called on our first class carriage attendant (yes, we had our own attendant) to fix our reading lights and give me an untorn sheet. I declined the untorn sheet. What I originally had was perfectly useful.
  • The same man called on me to lock the door to our four berth compartment, citing me as a foreigner who needed to protect herself. Perhaps we were more vulnerable traveling first class than in sleeper class. Perhaps he had a good point but I really didn't want to be awoken to unlock the door when our fourth inhabitant boarded in the middle of the night. I lost that battle and locked the door. The fourth person never showed up.
  • As I boarded my return train, a woman was sitting in my seat. When I felt guilty because I asked the woman to move, my friend cheered me up by reminding me, "She had to at least try to take your seat. Denied!"

Comments

Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources.  We built the Empowered Together app and tried crowd-sourcing those recommendations.  In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven.  Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.

leap for joy

Greetings from the land of Knee Shorts modest clothing, virgin margaritas, & clean flicks. Yes, I really encountered all those at the Great Salt Lake . The drive rivaled the drive to Vegas for number of praises from Mom. In my humble opinion, the drive to SLC wins, hands down. Mountains rise from clover-covered valleys, climaxing in snowy peaks. Cows & horses graze in bucolic pastures. We had a 2+ hour conference call w/ the siblings filled w/ Lisa singing Mariah Carey & Tim claiming he really was listening to everything we said. We arrived to the perfect hotel where we got to run, swim, AND bed jump. Thanks to Christine who introduced me to a bed jumping website (http://www.hotelsbycity.net/blog/bed-jump/), I had to try it. Caution: bed jumping can result in sleeping with one end of your bed on the floor OR with your suitcase holding up the mattress. By the way, Mom has declared a new gift. In addition to Master Map Reader and Spatial Arranger, she hereafter can spe