Skip to main content

shifting

Pictured above are my new roomies - Theresa (aka Big Man) & Jack (aka JMC). This was the first weekend in Hyderabad, full of alternate versions of ping pong, dancing, and climbing. Oh, yeah, and the business download from Nathan, my biz partner who was heading back to the US as I was returning to India.
As the Indians say, I shifted from Delhi to Hyderabad. I'm actually in the process of doing this as I type, having re-sorted the mountains of stuff I kept in Delhi and planning my return flight down to Hyderabad (aka Hbad or HYD). Tonight I get to hang out with the Delhi Dems Abroad crew again. I've been making use of Carolyn's flat as my Delhi office space and crashing with my friend, PC. I've had many wonderful reunions as friends have come to town from the mountains, the South, and just across the neighborhood. Harsh, who lives in Chennai, told me he was having a gift delivered to me in Delhi that was about the shape of a baseball bat. I screamed when Harsh showed up at the door and laughed to think that he likened himself to a baseball bat.
Work is going. It's a challenge to connect with the right folks and to understand the pharmaceutical market but I love challenges!

Comments

Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c

How I Got a Blister from a Cowbell

The bullhorn sounded and he was off, swimming his heart out, across a 50m stretch of lake as deep as his arm is long. My youngest, William, competed in his third year of the  Race4Chase  triathlon in August. When we first applied, I reflected on how I hoped this triathlon camp would allow Will to do something that was entirely his. It would be an opportunity to spread his wings apart from his sister's influence. For siblings of kids living with disabilities, this kind of autonomy is life giving. Back at the lakeside, I was watching Will from a distance and ringing a cowbell like no ones business. Will ran up from the waterfront and we cheered him on. He transitioned to the bike portion and we cheered him on. When he came into view at the end of the bike and transitioned to the run, the final segment of the race, we cheered him on. All the while, that cowbell was clanging. When Will sprinted across the finish line, there was no stopping him (or the cowbell). Thinking about that mome

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources.  We built the Empowered Together app and tried crowd-sourcing those recommendations.  In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven.  Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.