Skip to main content


Pictured above are my new roomies - Theresa (aka Big Man) & Jack (aka JMC). This was the first weekend in Hyderabad, full of alternate versions of ping pong, dancing, and climbing. Oh, yeah, and the business download from Nathan, my biz partner who was heading back to the US as I was returning to India.
As the Indians say, I shifted from Delhi to Hyderabad. I'm actually in the process of doing this as I type, having re-sorted the mountains of stuff I kept in Delhi and planning my return flight down to Hyderabad (aka Hbad or HYD). Tonight I get to hang out with the Delhi Dems Abroad crew again. I've been making use of Carolyn's flat as my Delhi office space and crashing with my friend, PC. I've had many wonderful reunions as friends have come to town from the mountains, the South, and just across the neighborhood. Harsh, who lives in Chennai, told me he was having a gift delivered to me in Delhi that was about the shape of a baseball bat. I screamed when Harsh showed up at the door and laughed to think that he likened himself to a baseball bat.
Work is going. It's a challenge to connect with the right folks and to understand the pharmaceutical market but I love challenges!


Popular posts from this blog

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome  (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c

leap for joy

Greetings from the land of Knee Shorts modest clothing, virgin margaritas, & clean flicks. Yes, I really encountered all those at the Great Salt Lake . The drive rivaled the drive to Vegas for number of praises from Mom. In my humble opinion, the drive to SLC wins, hands down. Mountains rise from clover-covered valleys, climaxing in snowy peaks. Cows & horses graze in bucolic pastures. We had a 2+ hour conference call w/ the siblings filled w/ Lisa singing Mariah Carey & Tim claiming he really was listening to everything we said. We arrived to the perfect hotel where we got to run, swim, AND bed jump. Thanks to Christine who introduced me to a bed jumping website (, I had to try it. Caution: bed jumping can result in sleeping with one end of your bed on the floor OR with your suitcase holding up the mattress. By the way, Mom has declared a new gift. In addition to Master Map Reader and Spatial Arranger, she hereafter can spe

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources.  We built the Empowered Together app and tried crowd-sourcing those recommendations.  In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven.  Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.