people who like each other

I think we were all in various stages of saying, "Hello" to the camera or we were just being silly as people who like each other are wont to do. I'm back in Delhi now after a wonderful week in the mountains with these peeps. We learned, played, camped, climbed, impersonated, laughed, danced, cooked, shivered, ate, acted, discussed, shared, and hiked together. I got to experience the pain and joy of the group process. If you know me, you know that I struggle with impatience. Once I get the point, I want to move onto the next point. Thanks to my training, I can label myself an Accommodating Learner with a bias towards action. And thanks to this week spent with amazing people of all learning styles, I can sit back and take a deep breath as I enjoy the journey.
Tonight is the first time in 12 days that I have an evening to myself. I miss being surrounded by close friends, deep fellowship, and challenging conversations. A friend's e-mail today reminded me to desire fellowship with my dear LORD before any other kind of fellowship. We are made for community and this deep yearning expresses a divine aspect of our character as humans. It is easier to run into the arms or living room of a close human rather than bow before an unseen God. But from whence cometh the love that I bring to those close humans? And Who is deserving of my very best?

Comments

Rare Disease Day 2024

Today's Rare Disease Day. There's sometimes a particular weightiness to life with a rare disease. All the appointments, emergencies, traumas, doctors, therapists, medicines, opinions, schedules and upset schedules. My touchpoint is being mom to my precious girl with Wiedemann-Steiner Syndrome (WSS). You'd have to spend a day or week shadowing me to know what it's really like. Doesn't that sound alienating? As though you couldn't possibly imagine if you're not living it? Well, maybe. But think about a time of immense grief you've lived through, or a time when your world seemed to be falling apart around you and it felt like everyone else was completely unaffected. I suppose it's a bit like that. You might have thought that those around you couldn't possibly know how that experience felt to you. A couple weeks ago, I started keeping a list of all the extraordinary things that happened in my life due to my daughter's rare disease. I learned a c

Startup Day 875: piloting in New Haven

Iteration is emblematic of startups. For example: From last year's pilot , we learned that parents and adults with disabilities were looking for recommended resources. We built the Empowered Together app and tried crowd-sourcing those recommendations. In our New Haven pilot, we're bringing database building in-house by listing accessible food, arts, and recreational businesses in greater New Haven. Thankfully, we have thought partners in this endeavor at the City of New Haven and at community disability orgs. We are working with a Quinnipiac student and awaiting word on additional grant funding. We're taking the right next step in changing the social system to be accessible and inclusive of People with Disabilities.

leap for joy

Greetings from the land of Knee Shorts modest clothing, virgin margaritas, & clean flicks. Yes, I really encountered all those at the Great Salt Lake . The drive rivaled the drive to Vegas for number of praises from Mom. In my humble opinion, the drive to SLC wins, hands down. Mountains rise from clover-covered valleys, climaxing in snowy peaks. Cows & horses graze in bucolic pastures. We had a 2+ hour conference call w/ the siblings filled w/ Lisa singing Mariah Carey & Tim claiming he really was listening to everything we said. We arrived to the perfect hotel where we got to run, swim, AND bed jump. Thanks to Christine who introduced me to a bed jumping website (http://www.hotelsbycity.net/blog/bed-jump/), I had to try it. Caution: bed jumping can result in sleeping with one end of your bed on the floor OR with your suitcase holding up the mattress. By the way, Mom has declared a new gift. In addition to Master Map Reader and Spatial Arranger, she hereafter can spe

Welcome to my virtual home!

Search This Blog